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Journal of the American Medical Informatics Association 5:88-103 (1998)
© 1998 American Medical Informatics Association


Synthesis of Research

An Informatics-based Chronic Disease Practice

Case Study of a 35-year Computer-based Longitudinal Record System

Robert A. Nordyke, MD and Casimir A. Kulikowski, PhD

Affiliations of the authors: The Pacific Health Research Institute and the John A. Burns School of Medicine, Honolulu, HI (RAN); Rutgers University, New Brunswick, NJ (CAK).

Correspondence and reprint requests: Casimir A. Kulikowski, PhD, Department of Computer Science, Hill Center, Busch Campus, Rutgers University, New Brunswick, NJ 08903. e-mail: <kulikows{at}cs.rutgers.edu>.

Abstract The authors present the case study of a 35-year informatics-based single subspecialty practice for the management of patients with chronic thyroid disease. This extensive experience provides a paradigm for the organization of longitudinal medical information by integrating individual patient care with clinical research and education. The kernel of the process is a set of worksheets easily completed by the physician during the patient encounter. It is a structured medical record that has been computerized since 1972, enabling analysis of different groups of patients to answer questions about chronic conditions and the effects of therapeutic interventions. The recording process and resulting studies severe as an important vehicle for medical education about the nuances of clinical practice. The authors suggest ways in which computerized medical records can become an integral part of medical practice, rather than a luxury or novelty.




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