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Consumer Informatics Supporting Patients as Co-Producers of Quality

Affiliations of the authors: Yale University, New Haven, Connecticut (BK); University of Wisconsin, Madison, Wisconsin (PFB).

Correspondence and reprints: Bonnie Kaplan, PhD, President, Kaplan Associates, 59 Morris Street, Hamden, CT 06517; e-mail: <bonnie.kaplan{at}yale.edu>.

Received for publication: 11/27/00; accepted for publication: 03/12/01.

The track entitled "Consumer Informatics Supporting Patients as Co-Producers of Quality" at the AMIA Spring 2000 Congress was devoted to examining the new field of consumer health informatics. This area is developing rapidly, as worldwide changes are occurring in the organization and delivery of health care and in the traditional roles of patient and provider. This paper describes the key themes of the track; implications of the growing area of consumer health informatics; and recommendations for informatics research, design, and policy. Key themes that emerged from the panels and discussions involved changes in roles of consumers and providers; supporting a patient–provider–information technology partnership; virtual, not physical, structure for health care and health care information delivery; and health care as an integrated part of one's life. Panelists and participants at the Congress developed recommendations for informatics research, design, and policy, with an overarching focus on how to support the patient–provider–information technology partnership to provide more patientcentered health care. They recommended that AMIA take an active leadership role in consumer health informatics. Specific recommendations were made concerning research, new patient record systems, provider support, information access and evaluation, and policy and regulation.

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