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First published June 7, 2004 as JAMIA PrePrint; doi:10.1197/jamia.M1479
Journal of the American Medical Informatics Association 2004;11(5):410-417
© 2004 American Medical Informatics Association


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Submitted on October 15, 2003
Accepted on April 4, 2004

Use of a Patient-Accessible Electronic Medical Record in a Practice for Congestive Heart Failure: Patient and Physician Experiences

Mark A. Earnest MD, PhD1, Stephen E. Ross MD1*, Loretta Wittevrongel1, Laurie A. Moore MPH2, and Chen-Tan Lin MD1

Affiliation of the authors: 1 Division of General Internal Medicine, University of Colorado Health Sciences Center, Aurora, CO; 2 Colorado Health Outcomes Program, University of Colorado Health Sciences Center, Aurora, CO

* To whom correspondence should be addressed.

Objective To evaluate the experiences of patients and physicians in a clinical trial of an online electronic medical record (SPPARO-System Providing Patients Access to Records Online).

Design Quantitative data were obtained from questionnaires. Qualitative data were obtained from individual interviews and focus groups.

Measurements Questionnaire items were based on issues identified by patients and physicians in previous studies. Individual interviews and focus groups were performed using a semi-structured format developed through an iterative process.

Results Of the eight physicians who participated in the trial, seven completed questionnaires and interviews. Of the 394 patients in the practice, 107 enrolled in the study and 54 were randomly assigned to the intervention group. Of these, 41 used SPPARO during the trial period. In questionnaires and interviews, patients were significantly more likely than physicians to anticipate benefits of SPPARO and less likely to anticipate problems. Attitudes of subjects did not diverge from controls after the intervention period. In post-trial focus groups, SPPARO users described its practical benefits. Comprehending medical jargon was a minor obstacle. Physicians anticipated that implementing SPPARO might increase their workload and distort their clinical interactions. In post-trial interviews, physicians and staff reported no change in their workload and no adverse consequences. All of the physicians ultimately supported the concept of giving patients online access to their clinical notes and test results.

Conclusion SPPARO was useful for a number of patients. Physicians initially voiced a number of concerns about implementing SPPARO, but their experience with it was far more positive.




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