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Submitted on March 26, 2004
Accepted on September 21, 2004
Affiliation of the authors: 1 Children's Hospital Informatics Program, Children's Hospital Boston, Boston, MA; Division of Emergency Medicine, Children's Hospital Boston, Boston, MA; 2 Children's Hospital Informatics Program, Children's Hospital Boston, Boston, MA; Division of Emergency Medicine, Children's Hospital Boston, Boston, MA; Harvard Medical School, Boston, MA; 3 Children's Hospital Informatics Program, Children's Hospital Boston, Boston, MA; Division of Endocrinology, Children's Hospital Boston, Boston, MA; Harvard Medical School, Boston, MA
* To whom correspondence should be addressed.
Despite progress in creating standardized clinical data models and inter-application protocols, the goal of creating a life-long healthcare record remains mired in the pragmatics of inter-institutional competition, concerns about privacy and unnecessary disclosure, and the lack of a nationwide system for authenticating and authorizing access to medical information. We describe the architecture of a personally-controlled healthcare record system, PING, that is not institutionally bound, is free and open source, and that meets the policy requirements that we have previously identified for healthcare delivery and population-wide research.
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