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First published July 27, 2005 as JAMIA PrePrint; doi:10.1197/jamia.M1758
Journal of the American Medical Informatics Association 2005;12(6):648-656
© 2005 American Medical Informatics Association


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Submitted on December 2, 2004
Accepted on May 25, 2005

Health@Home: The Work of Health Information Management in the Household (HIMH) - Implications for Consumer Health Informatics (CHI) Innovations

Anne Moen RN, PhD1* and Patricia Flatley Brennan RN, PhD, FAAN, FACMI2

Affiliation of the authors: 1 School of Nursing, University of Wisconsin-Madison, Madison, WI, USA, InterMedia, University of Oslo, Oslo, Norway; 2 School of Nursing and College of Engineering, University of Wisconsin-Madison, Madison, WI, USA

* To whom correspondence should be addressed.

Objective Contemporary health care places enormous health information management demands on lay people. Insight to their skills and habits complements current developments in consumer health innovations, including personal health records. Using a five-element human factors model of work, health information management in the household (HIMH) is characterized by the tasks completed by individuals within household organizations, using certain tools and technologies in a given physical environment.

Design We conducted a descriptive-exploratory study of the work of HIMH, involving 49 community-dwelling volunteers from a rural Midwestern community.

Measurements During in-person interviews, we collected data by semi-structured questionnaires and photographs of artifacts used for HIMH.

Results The work of HIMH is largely the responsibility of a single individual, primarily engaged in the tasks of acquiring, managing, and organizing a diverse set of health information. Paper-based tools are most common, and residents develop strategies for storing information in the household environment aligned with anticipated use. Affiliative relationships, e.g. parent-child or spousal, within the household serve as the organization that gives rise to health information management practices. Synthesis of these findings led to identification of several storage strategies employed in HIMH. These strategies are labeled just-in-time, just-because, just-in-case and just-at-hand, reflecting location of the artifacts of health information and anticipated urgency in the need to retrieve it.

Conclusion Lay people develop and employ robust, complex strategies for managing health information in the home. Capitalizing on these strategies will complement and extend current consumer health innovations to provide functional support to people who face increasing demands to manage personal health information.




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