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First published December 15, 2005 as JAMIA PrePrint; doi:10.1197/jamia.M2025
Journal of the American Medical Informatics Association 2006;13(2):121-126
© 2006 American Medical Informatics Association

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Submitted on November 29, 2005
Accepted on December 5, 2005

Personal Health Records: Definition, Benefits, and Strategies for Overcoming Barriers to Adoption

Paul C. Tang MD, MS1*, Joan S. Ash PhD2, David W. Bates MD3, J. Marc Overhage MD, PhD4, and Daniel Z. Sands MD, MPH5

Affiliation of the authors: 1 Palo Alto Medical Foundation, Palo Alto, CA; 2 Oregon Health & Science University, Portland, OR; 3 Brigham and Women's Hospital and Harvard University, Boston, MA; 4 Regenstrief Institute, Indianapolis, IN; 5 Beth Israel Deaconess Medical Center and Harvard Medical School, Boston, MA; Zix Corporation, Dallas, TX

* To whom correspondence should be addressed.

Recently there has been a remarkable upsurge in activity surrounding the adoption of personal health record (PHR) systems for patients and consumers. The biomedical literature does not yet adequately describe PHR systems' potential capabilities and utility. In addition, the lack of a proven business case for widespread deployment hinders PHR adoption. In a 2005 working symposium, the American Medical Informatics Association's College of Medical Informatics (the College) discussed the issues surrounding personal health record systems and developed recommendations for PHR-promoting activities. PHR systems are more than just static repositories for patient data; they combine data, knowledge, and software tools that help patients to become active participants in their own care. When PHRs are integrated with electronic health record systems, they provide greater benefits than would standalone systems for consumers. This paper summarizes the College Symposium discussions on PHR systems and provides definitions, system characteristics, technical architectures, benefits, barriers to adoption, and strategies for increasing adoption.




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